Jóvenes con discapacidad intelectual en la universidadentre la sobreprotección y la autodeterminación

  1. Delgado Catalán, Susana 1
  2. Arias Astray, Andrés 2
  3. Sotomayor Morales, Eva 1
  1. 1 Universidad de Jaén
    info

    Universidad de Jaén

    Jaén, España

    ROR https://ror.org/0122p5f64

  2. 2 Universidad Complutense de Madrid
    info

    Universidad Complutense de Madrid

    Madrid, España

    ROR 02p0gd045

Revista:
Siglo Cero: Revista Española sobre Discapacidad Intelectual

ISSN: 2530-0350

Any de publicació: 2022

Volum: 53

Número: 2

Pàgines: 145-165

Tipus: Article

DOI: 10.14201/SCERO2022532145165 DIALNET GOOGLE SCHOLAR lock_openAccés obert editor

Altres publicacions en: Siglo Cero: Revista Española sobre Discapacidad Intelectual

Objectius de Desenvolupament Sostenible

Resum

The aim of this research is to analyse the effects of the inclusion of people with mild intellectual disabilities (hereinafter referred to as PMID) in the university. Drawing on Destanik’s (2004) theories on the family ecosystem and Bronfenbrenner’s (1987) ecological model, we start from the hypothesis that the inclusion of PMIDs in a university environment will lead to a decrease in family overprotection, which is not free of conflicts. This is tested using a mixed methodological model that analyses the discourses of the families and data collected through the Parental Bonding Instrument (Parker et al., 1979) provided by the PMIDs. The results seem to support the hypothesis that a university environment decreases both paternal and maternal overprotection, although it seems to be associated with an increase in the “caring” factor on the part of mothers. On the other hand, PMIDs see their self-determination strengthened in a university context. In this way, the study provides evidence on the convenience of articulating programmes that favour the access of PMIDs to the university environment, contributing to promoting and guaranteeing their rights and making effective the principle of equal access to inclusive education, as stated in Article 24 of the UN Convention on the Rights of Persons with Disabilities in 2006.

Referències bibliogràfiques

  • ABADIN, R. (1992). The determinants of parenting behavior. Journal of Clinical Child Psychology, 21(4), 407-412.
  • BALLÚS-CREUS, C. (1991). Adaptació del Parental Bonding Instrument. Escola Profesional de Psicología.
  • BARRON, K. (2001). Autonomy in everyday life, for whom? Disability and Society, 16(3), 431-447.
  • BORLAND, J. y JAMES, S. (1999). The learning experience of students with disabilities in higher education. A case study of a UK university. Di-sability and Society, 14(1), 85-101.
  • BRONFENBRENNER, U. (1987). La Ecología del desarrollo humano. Experimentos en entornos naturales diseñados. Paidós.
  • CABEZAS, D. y FLORES, J. (2015). Educación postsecundaria en el entorno universitario para alumnos con discapacidad intelectual. Fundación PRODIS y Fundación Iberoamericana DOWN 21.
  • CAMPBELL, D. y STANLEY, J. (2005). Diseños experimentales y cuasi-experimentales en la investigación social. Amorrortu.
  • CAPRI, C. y SWARTZ, L. (2017). We are actually, after all, just children’: Caring Societies and South African infantilisation of adults with intellec-tual disability. Disability and Society, 33(2), 285-300. https://doi.org/10.1080/09687599.2017.1409102
  • CARROLL, S., HERMAN, A. y WICKIZER, G. (2012). Faculty and students insights on postsecondary inclusion. Paper presented at State of the Art Conference on Postsecondary Education and Individuals with Intellectual Disabilities, November 30. Fairax, Virginia.
  • CAVEDO, L. C. y PARKER, G. (1994). Parental bonding instrument. Social Psychiatry and Psychiatric Epidemiology, 29(2), 78-82.
  • CRESWELL, J. W., CLARK, V. L. P., GUTMANN, M. L. y HANSON, W. E. (2003). Advanced mixed method research design. En A. TASHAKKORI y C. TEDDLIE (Eds.), Handbook of mixed methods in social and behavioral research (pp. 209-214). Sage.
  • DESATNIK, O. (2004). El modelo estructural de Salvador Minuchin. En L. EGUILUZ (Comp.), Terapia familiar. Su uso hoy en día (pp. 49-79). Pax México.
  • EISENMAN, L. T. y MANCINI, K. (2010). College perspectives and issues. En M. GRIGAL y D. HART (Eds.), Think College: Postsecondary education options for students with intellectual disabilities (pp. 161-187). Paul H. BrooKes.
  • FERNÁNDEZ-ALCÁNTARA, M., CORREA-DELGADO, C., MUÑOZ, Á., SALVATIERRA, M. T., FUENTES-HÉLICES, T. y LAYNEZ-RUBIO, C. (2017). Parenting a child with a learning disability: a qualitative approach. International Journal of Disability, Development and Education, 64(5), 526-543.
  • FERNÁNDEZ-ÁVALOS, M. I., PÉREZ-MARFIL, M. N., FERRER-CASCALES, R., CRUZ-QUINTANA, F., CLEMENT-CARBONELL, V. y FERNÁNDEZ-ALCÁNTARA, M. (2020). Quali-ty of life and concerns in parent caregivers of adult children diagnosed with intellectual disability: a qualitative study. International Journal of Environmental Research and Public Health, 17(22), 8690. https://doi.org/10.3390/ijerph17228690
  • GETZEL, E. E. (2008). Addressing the persistence and retention of students with disabilities in higher education: incorporating key strategies and supports on campus. Exceptionality, 16(4), 207-219.
  • GLADSTONE, G., PARKER, G., WILHELM, K., MITCHELL, P. y AUSTIN, M. P. (1999). Characteristics of depressed patients who report childhood sexual abuse. American Journal of Psychiatry, 156(3), 431-437.
  • GOFFMAN, E. (2003). Estigma: la identidad deteriorada. Amorrortu.
  • GÓMEZ, Y., VALLEJO, V. J., VILLADA, J. y ZAMBRANO, R. (2010). Propiedades psicométricas del Instrumento de Lazos Parentales (Parental Bonding Instrument, PBI) en la población de Medellín, Colombia. Pensando Psicología, 6(11), 65-73.
  • GÓMEZ-PUERTA, M. y CARDONA, M. C. (2010). Percepciones y actitudes de los padres acerca de la discriminación de sus hijos por razón de discapacidad intelectual. Educación y Diversidad, (4)1, 73-88.
  • GRIGAL, M., HART, D. y WEIR, C. (2012). A survey of postsecondary education programs for students with intellectual disabilities in the United States. Journal of Policy and Practice in Intellectual Disabilities, 9(4), 223-233. https://doi.org/10.1111/jppi.12012
  • HAFNER, D., MOFFATT, C. y KISA, N. (2011). Novedad: integración de estudiantes con discapacidades intelectuales y de desarrollo en una uni-versidad de artes liberales de 4 años. Desarrollo Profesional para Personas Excepcionales, 34(1), 18-30.
  • HART, D., GRIGAL, M. y WEIR, C. (2010). Expanding the paradigm: Postsecondary education options for individuals with autism spectrum disor-der and intellectual disabilities. Focus on Autism and Other Developmental Disabilities, 25(3), 134-150. https://doi.org/10.1177/1088357610373759
  • HEIMAN, T. (2002). Parents of children with disabilities: resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14(2), 159-171. https://doi.org/10.1023/A:1015219514621
  • HEMM, C., DAGNAN, D. y MEYER, T. D. (2018). Social anxiety and parental overprotection in young adults with and without intellectual disabili-ties. Journal of Applied Research in Intellectual Disabilities, 31(3), 360-368. https://doi.org/10.1111/jar.12413
  • HENDEY, N. y PASCALL, G. (1998). Independent living: gender, violence and the threat of violence. Disability and Society, 13(3), 415-427. https://doi.org/10.1080/09687599826713
  • HEYWOOD, J. (2010). Childhood disability: ordinary lives for extraordinary families. Community Practitioner: the Journal of the Community Practitioners’ and Health Visitors’ Association, 83(4), 19.
  • IBÁÑEZ, N., MUÑOZ, D., ORTEGA, M. y SORIANO, J. (2006). Construcción del vínculo parental en patología alimentaria y trastorno límite de la per-sonalidad asociado. Trastornos de la Conducta Alimentaria, 4, 386-422.
  • IRAZABAL, M., PASTOR, C. y MOLINA, M. C. (2016). Family impact of Care and Respite Service: life experiences of mothers of adult children with intellectual disability and mental disorders. Revista de Cercetare si Interventie Sociala, 55, 7-18.
  • IZUZQUIZA GASSET, D. (2012). El valor de la inclusión educativa de jóvenes con discapacidad intelectual en las instituciones de Educación Supe-rior: el Programa Promentor. Bordón. Revista de Pedagogía, 64(1), 109-125.
  • JONES, M. M. y GOBLE, Z. (2012). Creating effective mentoring partnerships for students with intellectual disabilities on campus. Journal of Policy and Practice in Intellectual Disabilities, 9(4), 270-278. https://doi.org/10.1111/jppi.12010
  • LYNCH, K. B. y GETZEL, E. E. (2013). Practice brief: assessing impact of inclusive postsecondary education using the Think College Standards. Journal of Postsecondary Education and Disability, 26(4), 385-393.
  • MADRIGAL-LIZANO, A. M. (2015). El papel de la familia de la persona adulta con discapacidad en los procesos de inclusión laboral: un reto para la educación especial en Costa Rica. Revista Electrónica Educare, 19(2), 197-211. https://doi.org/10.15359/ree.19-2.12
  • MARTÍN, R. C., GASSET, D. I. y GÁLVEZ, I. E. (2013). Inclusión de jóvenes con discapacidad intelectual en la Universidad. Revista de Investigación en Educación, 11(1), 41-57.
  • MONJAS, M. I., MARTÍN-ANTÓN, L. J., GARCÍA-BACETE, F. J. y SANCHIZ, M. L. (2014). Rechazo y victimización al alumnado con necesidad de apoyo educativo en primero de primaria. Anales de Psicología, 30(2), 499-511. https://doi.org/10.6018/analesps.30.2.158211
  • O’CONNOR, B., WATSON, R., POWER, D. y HARTLEY, J. (1998). Students with disabilities: code of practice for Australian tertiary institutions. Com-monwealth of Australia Department of Education Training and Youth Affairs. QUT Publications and Printing.
  • PALACIO, M. M. y LILIAN, N. (2009). La autodeterminación en adolescentes con discapacidad intelectual. Innovar, 19(1), 53-64.
  • PARKER, G. (1990). The Parental Bonding Instrument: a decade of research. Social Psychiatry and Psychiatric Epidemiology: the International Journal for Research in Social and Genetic Epidemiology and Mental Health Services, 25(6), 281-282. https://doi.org/10.1007/BF00782881
  • PARKER, G., TUPLING, H. y BROWN, L. B. (1979). A parental bonding instrument. British Journal of Medical Psychology, 52(1), 1-10. https://doi.org/10.1111/j.20448341.1979.tb02487.x
  • PARRA, V. M., PALACIOS, A. y ROMAÑACH, J. (2007). El modelo de la diversidad. La Bioética y los Derechos Humanos como herramientas para alcanzar la plena dignidad en la diversidad funcional. Diversitás Ediciones.
  • RILLOTTA, F., ARTHUR, J., HUTCHINSON, C. y RAGHAVENDRA, P. (2020). Inclusive university experience in Australia: perspectives of students with intellectual disability and their mentors. Journal of Intellectual Disabilities, 24(1), 102-117. https://doi.org/10.1177/1744
  • RYAN, J. y STRUTHS, J. (2004). University education for all? Barriers to full inclusion of students with disabilities in Australian universities. Inter-national Journal of Inclusive Education, 8(1), 73-90. https://doi.org/10.1080/1360311032000139421
  • SATO, T., NARITA, T., HIRANO, S., KUSUNOKI, K., SAKADO, K. y UEHARA, T. (1999). Análisis factorial confirmatorio del Parental Bonding Instrument en una población japonesa. Medicina Psicológica, 29(1), 127-133. https://doi.org/10.1017/S003329179800779X
  • SCHALOCK, R. L. y VERDUGO, M. Á. (2007). El concepto de calidad de vida en los servicios y apoyos para personas con discapacidad intelectual. Siglo Cero, 38(4), 224, 21-36.
  • SCHWEITZER, R. D. y LAWTON, P. A. (1989). Drug abusers’ perceptions of their parents. British Journal of Addiction, 84(3), 309-314. https://doi.org/10.1111/j.1360-0443.1989.tb03464.x
  • STAINTON, T. y BESSER, H. (1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual and Develo-pmental Disability, 23(1), 57-70. https://doi.org/10.1080/13668259800033581
  • VILAREGUT, A. (2002). Fami?lia y drogoaddiccio?: dina?mica familiar, vincle conjugal i parental en fami?lies amb un membre jove-adult drogode-pendent. Tesis doctoral no publicada. Universitat Ramon Llull, Barcelona, Espan?a.